Have you ever watched 'Mystery Diagnosis' and thought, "Hey! I could be on there!"
My boyfriend and I joked many times about nominating me for the show. Just for the record, my boyfriend won't admit it, but I do believe he may have even written a letter to the producers asking them to allow me on the show! ;)
Well, a Behcet's episode has already been done. (Too bad it wasn't shown while I was at home on the couch wondering what was wrong with me! HaHa). Joanne Zeis, a women who experienced Behcet's symptoms 17 years without being diagnosed, was the women on the Behcet's episode of 'Mystery Diagnosis'. From her website, http://www.behcetsdisease.com/basics.htm (this is actually her older website, but it still has very good information on it) there is a link to the 'Mystery Diagnosis' website. Or, I can just copy and paste the link here! Here it is: http://www.muzility.com/videoviewer.php?mech_id=8d34201a5b85900908db6cae92723617
(But seriously, go to her site, has some good info on it.)
Her newest site is http://behcets.blogspot.com/.
Johanne Zeis is not just 'some women' doing research in her spare time, she is creditable, has achieved recognition from various institutes, and has dedicated her life to informing people on Behcet's. Most importantly, she is just a normal person, like me and you, who is going above and beyond to try and raise awareness for this disease. Definitely a great source.
